Pure and undefiled religion in the sight of our God and Father is this: to visit orphans and widows in their distress, and to keep oneself unstained by the world. (James 1:27. NASB)
Sunday, June 20, 2010
That's the crazy thought that went through our minds when we saw Baby Boy's bed in his room at Children's Hospital! I have never been to a children's ward, so I had never seen the cages beds that kids sleep in. I guess we needed some comic relief after our ER scare. I am a slow learner, I still did not figure out the seriousness of my son's illness even after the triage nurse immediately showed us into a room upon arrival, seeing a team of three respiratory technicians, five nurses and three doctors all working on my son and all asking me rapid fire questions. Baby Boy has had more than his fair share of ER visits at our regular hospital (nothing like being on first name basis with the ER staff), but I thought that since this was a Children's hospital, this was protocol having so many people working on your child!
Baby Boy earned himself a four day stay at Children's Hospital and my heart goes out to parents whose children have extended hospitalizations. It is exhausting trying to keep a child from tearing off their IVs, keeping them in their beds when all they want to do is to make a run for it, and entertaining a child who is stuck in bed and who is anxious because he misses his siblings, but they can't visit him because he is under precautionary isolation. But, all things considered, Baby Boy was such a trooper and we did finally see a doctor who is more aggressive in treating asthma. We had seen a pulmonologist a couple of weeks before Baby Boy's hospitalization because I felt we did not have a good treatment plan for Baby Boy's asthma, but the pulmonologist pretty much kept the same treatment plan as Baby Boy's regular pediatrician. Now we have a better treatment plan and a lot less guilt for mommy because I felt like I missing something since I was following all the doctor's orders but Baby Boy was still making too many emergency room visits. 2 of my other kids have garden variety asthma while Baby Boy is a labile asthmatic - fine one minute and within hours his heart rate is racing, low oxygen saturation and really high respirations and needs more help than just his nebulizer.
Baby Boy is now back to his old happy self and he was one happy camper to be back home. We see his developmental pediatrician this week. Little guy needs a break - he is a friendly guy alright, but our heads spin with the medical professionals in his team - pediatrician, speech therapist, occupational therapist, developmental pediatrician, early interventionist and now a pulmonologist. But we are really grateful for access to excellent medical care and understanding work places.